I received this note on my blog today from a mom whose daughter has Maple Syrup Urine Disease.
“I found your blog through a Google alert for MSUD. My daughter has MSUD, and I blog about our experiences with it at http://www.ourtransplantjourney.net.“
There are some great entries on this blog. She talks about her daughters journey to a liver transplant as a result of the MSUD.
She is also collecting pop tops for Ronald McDonald House in Pittsburgh. if you would like to participate. Please read this entry on her blog.
I’ve added this blog to my reading list. I think you should too.